On the 28th July 2011, my life changed in one phone call with the simple words - 'yes - it's cancer'. I've created this blog, for the benefit of my wonderful close and extended family; and for my amazing friends around the globe, so I can keep you abreast (!) of my journey.

My diagnosis of 2 x grade 3 (fast growing) tumours - type - 'Triple-Negative' - so called
because it doesn’t
have receptors (proteins on the surface
of cells) for the hormones oestrogen and
progesterone, or a protein called HER2, was shocking. This rare aggressive sub-type of breast cancer, therefore, doesn't respond to common
hormonal treatments, such as tamoxifen or
anastrozole (Arimidex®
) or
trastuzumab (Herceptin®
). Survival rates are considerably lower, than for more common types of breast cancer, especially in years 0 - 5, but on a par 5+ years post treatment.

Fast forward to December 2020. Secondary cancer . Triple negative again but the tumour localised to the scar of the primary cancer. The prognosis is weaker. I am buying myself time - with chemo currency.

This will not be a sad tale - but I hope it will amuse you, inspire you, and most of all allow me to lean on you from afar, as you guide me through what looks like a rocky road ahead.

I can't guarantee a happy ending, but hope to make you laugh to the end.

Wednesday, 14 April 2021

Brutal

 It's week three, day 19. I get ready. False boobie in, new wig on, makeup applied. The salons are open and I'm delighted to get an early appointment to have may nails manicured and polished. A toe tidy and very fetching purple polish. A girly chat with Anne, my long time beauty therapist. I feel almost human again. In fact I feel brilliant! We call in to see Mum (she's in our covid bubble). At 84 she's had a new knee. As she demonstrates how well she can walk with crutches - I'm in awe of her. She's walked like a crooked old lady for the best part of 18 months - and there she is  - walking tall, upright and pain free. I'm so proud of her.

It's blood week, and it serves as a reminder that I'm about to embark on another round of chemo. I can hardly believe it. I don't want it but what can I do? Before I do - I plan to take to take Lily to the hairdressers for a Mum and daughter treat. She may as well use my hair allowance for the next year - I wont be needing it! While I'm feeling well, this is when I do stuff. Make meals for the freezer, scrub the shower, clean the floors. Oh the joy! But it's good the get things done. Because I'm about to embark on one of the hardest things I've ever done in my life. Chemo Round 3. It's going to be brutal.

Round 2 and the Dairy Milk test

 I slowly recover and it's soon time to prepare for round 2 of the chemo. The district nurse comes, as they do every Wednesday, and takes blood to make sure my blood count is fit enough to take more chemo. Later that evening, after eating our evening meal, we get a disturbing phone call. The doctor on the line tells me my potassium levels are dangerously; high my heart could stop at any minute. I am to go straight to A&E - they will be expecting me. I grab the overnight bag and Gary drives me in. We're all worried.

On a bed in a ward, hooked up to a heart monitor, and heart tracing - more bloods are taken. Several hours later the results are in. My potassium is OK. Drama over. I can go home. Nearing midnight I ponder whether I should get a taxi home or phone and wake Gary. I decide on the latter and wake him from his slumber. He gallantly offers to come and pick me up. More bloods are taken in the morning and I'm declared fit enough to get my chemo the next day.

Friday 26th March sees me taking chemo number 2. The actual act of accepting chemo into my body is easy. I'm hooked up to various drugs via my PICC line. It doesn't hurt but the whoosh of drugs is palpable. After about 4 hours, I leave, woozy, slightly drunk and weirdly optimistic. That's the steroids talking - the large doses I'm on for three days give you a sense of well-being.

I'm up and about for day one and two - the steroids doing their job. I administer the dreaded bone marrow boosting drug. They've given me one long lasting injection, rather than 7 days of injections, to try and minimise the dreadful sides effects I had last time - horrendous bone and muscle pain. Day three and I crash. Big time. I feel so ill - I actually think I'm dying. Nothing I do helps. I try and lie very still ans every movement is painful, my body is full of drugs, my head is spinning. I did that thing where you tell yourself, if I get up and have a shower, I'll feel better. I don't. I feel worse. I'm not sure I can do this - it's too much. Gary's worried but tries to reassure me that next week I'll feel better. I find it hard to believe him. Day four is much the same. Days five to sixteen are a very very slow recovery. Each day I feel chemo-y. Full of drugs. Giddy. Joint, bone and muscle pain. Quite frankly it's rubbish and I'm finding it hard to keep positive. Everything tastes foul. Now I love a bit of Cadbury's Dairy Milk. everyday I have a bit of my Easter egg and everyday it tastes disgusting. It takes until day 18 after chemo for it to taste right. That's a relief as I'm driving Gary mad - I keep throwing milk away thinking its off.

Discharged

 Hooked up to intravenous antibiotics, I'm kept in hospital for 3 days. It's strange in these Covid times as there's no visiting, no TV, no locker by your bed to store your things. I'm living out of my overnight bag, feeling thankful that I've got my phone, charger and Kindle. A lady in the bay keeps putting her coat on and disappearing. 'Just going for a fag' she declares. I wonder what the matter with her is - she can't be that ill if she can walk out of the hospital grounds - its a fair walk.

I'm discharged with 7 days double dose of antibiotics. Glad to be home; in my own bed. 

There's one piece of chocolate cake left.