Good Afternoon.
I know, I know - it's been a while.
But....
Here I am...!
The past 6 weeks have brought me a gradual acceptance of who I am and what I am facing. This is largely thanks to the Hospice again for providing fantastic counselling services. From being de-railed in the recovery phase - you know, the boring aches & pains/fatigue/things not moving as quickly as I'd hoped - I can now report I'm back on track!
Quite where this particular track is taking me is anyone's guess - but at least I'm moving forward - in a more positive manner.
I went to see the fabulous Macmillan lady at the CAB (Citizens Advice Bureau). If you wanted a pussy cat in Terrier's clothing - then there she is. An extremely knowledgeable, tenacious girl who is a passionate advocate for Macmillan Cancer services combined with a pull for citizen's rights. We checked out the DWP's notice that I am 'able to work' and promptly completed the necessary paperwork to appeal the decision. Combined with a statement from my GP, this was sent 42 days ago. The DWP have 50 days to revert their decision or to forward to Tribunal. Watch this space! I did go and attend the interview 'to get me back to work' and luckily found a chap with a sympathetic ear - and a personal knowledge of post cancer treatment - who gave me a period of grace while the issue is sorted. If I wish - I am able to seek out a bit of part-time or voluntary work, when I'm ready, to 'test the water' as it were. So all is not lost.
The GP has been brilliant - as usual. I'm on some old-fashioned medication - which has taken the edge off general aches & pains; had my knees x-rayed to check for specific pain hot spots; bloods checked regularly for cancer markers and lots of talking support.
As we move towards the Christmas season, I am keenly reminded of how it was last year. We really did believe it would be my last Christmas. I was in the middle of chemo, had gone bald and felt a bit rough!
Lily made a fabulous witch (see photos) for the school Hallowe'en Disco and won 'best costume' at the Brownie Guides disco. Lily has joined Brownies with enthusiasm and gusto. I must admit I was a Brownie & a Girl Guide ['Be prepared'] and loved every minute of it. Her boundless energy extends to playing the recorder and the fife (pre-cursor to the flute). Now I don't know what's worse - Lily practising the recorder (yes darling what a lovely screeeaach!) or Gary showing us his prowess as a recorder player...Three Blind Mice, We wish you a Merry Christmas and Good King Wenceslas. I must find my old one...yes I had to play a solo piece at the school carol concert when I was 7....and the Gang of Three could try for a Recorder-ing contract! Ha! Only joking!
And talking of Christmas - we are only a few weeks away from our trip to Lapland - to find the real Santa Claus. We are getting kitted out with our ski base layers....thermal vests & long-johns to the uninitiated! Hats, gloves, socks, balaclava's etc. We're VERY excited - particularly Lily - and have had 101 questions on the whole subject of Santa, Rudolph, Elves etc thrown at us. I just hope our fabulous snow-bound trip and our private meeting in the forest cabin with the big man in red answers some of her queries.
And give me a tick nest to my 'bucket list' of things to do before I kick the bucket of course!
Talking of my bucket list, our Lion King adventure - was, quite simply, majestic. If you've been to see the live West End production you will know what I mean..stunningly beautiful characters, evocative music and a stirring performance showing the death of a parent. Tear-jerking but wonderful.
A big thank you to JoB, bump and Dave. Thank you for driving all the way down to us. It was amazing to see you and have a couple of days of fun! Can't wait to make the return visit!
And watch out Derby...in two weeks the girls will be back in town! A promise to some old girlfriends last year, when I was really poorly, has come to fruition....get out the red paint brushes....we're on our way!
So, that's it folks!
I'll try not to leave it so long next time...xx
On the 28th July 2011, my life changed in one phone call with the simple words - 'yes - it's cancer'. I've created this blog, for the benefit of my wonderful close and extended family; and for my amazing friends around the globe, so I can keep you abreast (!) of my journey.
This will not be a sad tale - but I hope it will amuse you, inspire you, and most of all allow me to lean on you from afar, as you guide me through what looks like a rocky road ahead.
I can't guarantee a happy ending, but hope to make you laugh to the end.
My diagnosis of 2 x grade 3 (fast growing) tumours - type - 'Triple-Negative' - so called
because it doesn’t
have receptors (proteins on the surface
of cells) for the hormones oestrogen and
progesterone, or a protein called HER2, was shocking. This rare aggressive sub-type of breast cancer, therefore, doesn't respond to common
hormonal treatments, such as tamoxifen or
anastrozole (Arimidex®
) or
trastuzumab (Herceptin®
). Survival rates are considerably lower, than for more common types of breast cancer, especially in years 0 - 5, but on a par 5+ years post treatment.
Fast forward to December 2020. Secondary cancer . Triple negative again but the tumour localised to the scar of the primary cancer. The prognosis is weaker. I am buying myself time - with chemo currency.
This will not be a sad tale - but I hope it will amuse you, inspire you, and most of all allow me to lean on you from afar, as you guide me through what looks like a rocky road ahead.
I can't guarantee a happy ending, but hope to make you laugh to the end.
Tuesday, 13 November 2012
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