Wake up!
It's my birthday!
And so it was. My gorgeous, reason for living, little girl's 7th birthday.
Presents appeared. Masses of wrapping paper and cards strewn on our giant bed.
Mermaid Barbie.
Talking boyfriend Ken.
Moshi monsters
You name it. They were all in our bed!
When we finally emerged - Lily declared a 'Pyjama Day!' - and so, with her new butterfly PJ's on she practised what she had preached.
Earlier in the week I had asked what she would like for a special birthday dinner - as her party wasn't til the following day.
Pizza?
Chicken nuggets?
No.
Not our Lily.
Mussels to start with please Mummy, then rare steak, and we'll have profiteroles for dessert.
And can we have Shloer to drink?
The next day - party day. Great excitement all round.
Lily had invited 14 friends to the Quince Honey Farm. An hour & half play in the indoor soft-play/climbing zone. Face painting (by yours truly - I quickly taught myself a bumble bee & a spider!). A party tea. And the arrival of my epic home-made bee-hive shaped cake - complete with sugar bees, and a honey-comb (courtesy of Cadbury's Crunchy Bars!) topping. Marvellous! The children were all delightful. They all had great fun. No injuries, no fights, and no tears.....
Gary & celebrated our 12th Wedding Anniversary.
It was quite poignant. We were glad that we could celebrate together. That I'm still here.
Out of the blue - Gary decided to take me away for a luxury weekend.
And boy - what an amazing time we had.
A suite, overlooking the sea at the St Moritz Hotel in Cornwall.
Full use of pool & Cowshed spa
A couples massage & facial
Champagne
Exquisite Dinner
A toast - to each other for surviving....
Emperor bed, etc, etc, etc
A weekend to remember.....
Thank you Gary G.
For everything. x
On the 28th July 2011, my life changed in one phone call with the simple words - 'yes - it's cancer'. I've created this blog, for the benefit of my wonderful close and extended family; and for my amazing friends around the globe, so I can keep you abreast (!) of my journey.
This will not be a sad tale - but I hope it will amuse you, inspire you, and most of all allow me to lean on you from afar, as you guide me through what looks like a rocky road ahead.
I can't guarantee a happy ending, but hope to make you laugh to the end.
My diagnosis of 2 x grade 3 (fast growing) tumours - type - 'Triple-Negative' - so called
because it doesn’t
have receptors (proteins on the surface
of cells) for the hormones oestrogen and
progesterone, or a protein called HER2, was shocking. This rare aggressive sub-type of breast cancer, therefore, doesn't respond to common
hormonal treatments, such as tamoxifen or
anastrozole (Arimidex®
) or
trastuzumab (Herceptin®
). Survival rates are considerably lower, than for more common types of breast cancer, especially in years 0 - 5, but on a par 5+ years post treatment.
Fast forward to December 2020. Secondary cancer . Triple negative again but the tumour localised to the scar of the primary cancer. The prognosis is weaker. I am buying myself time - with chemo currency.
This will not be a sad tale - but I hope it will amuse you, inspire you, and most of all allow me to lean on you from afar, as you guide me through what looks like a rocky road ahead.
I can't guarantee a happy ending, but hope to make you laugh to the end.
Tuesday, 26 June 2012
Thursday, 14 June 2012
Lily's View....
Lily: 'It's nearly my birthday!'
Me: 'It certainly is'
Lily: 'This time last year, Mummy, we were in Turkey'
Me: 'Yes. That's right, my lovely. We were.'
Lily: 'And I had my sixth birthday in Turkey.'
Me: 'You did'
Lily: 'So we went to Turkey for my birthday'
Me: 'Yes, we did'
Lily: 'So it's my fault you got cancer.......cos if we hadn't gone to Turkey for my birthday, you wouldn't have caught cancer there, and you wouldn't be poorly. It's all my fault'
No, no, no, no, no.........
Heartbreaking - isn't it?
Just when you think life's getting back on an even keel.
So that'll be Turkey ruled out as a future holiday destination then!! Lol.
Me: 'It certainly is'
Lily: 'This time last year, Mummy, we were in Turkey'
Me: 'Yes. That's right, my lovely. We were.'
Lily: 'And I had my sixth birthday in Turkey.'
Me: 'You did'
Lily: 'So we went to Turkey for my birthday'
Me: 'Yes, we did'
Lily: 'So it's my fault you got cancer.......cos if we hadn't gone to Turkey for my birthday, you wouldn't have caught cancer there, and you wouldn't be poorly. It's all my fault'
No, no, no, no, no.........
Heartbreaking - isn't it?
Just when you think life's getting back on an even keel.
So that'll be Turkey ruled out as a future holiday destination then!! Lol.
Tuesday, 12 June 2012
Normality......
It's OK folks.
I'm still here.
Please don't worry.
Suffering from writers block......
Or have I just been too busy getting on with it?
I'm being checked on every 2 weeks at the moment, and that's OK too. Four weeks ago I got a shot of super steroids (a prick up the rear!.....[the old ones are always the best]) - and although its taken about 3 weeks to work - I feel really great! The stiffness in my hands has all but disappeared, the pain in my right arm has improved, and I generally feel really good! I do get tired still, and know when I've done 'too much' as I feel 'chemo-y' and oddly, very cold. Yes - I'm the one who still puts an electric blanket on in the heatwave! My last blood tests have all come back within normal ranges & my latest X-rays show a degenerative spine - wear & tear - but no cancer in that area. Great news. My 'biggie' appointment is set for July 5th.......deep breath.
So the Jubilee is upon us!
It's all looking rather patriotic round here. The local pub is festooned in red, white & blue, as are many cottages nearby. Even I've succumbed to some bunting & flags in the house to keep young Lily happy. And there's the Jubilee Clift Bash to look forward to.The whole family, my brother and two sisters & families, and us, and Aunty Jean are all descending on my amazing Mum & Dad for some rain soaked Pimms, whole salmon and a myriad of desserts & cakes.
Tuesday 12th June
Well - come last Wednesday night - I was entirely Jubilee'd out. After an entertaining, if wet, day at Mum & Dad's on Tuesday - the freak show being provided by ones older sister's family - we then had a super lunch at Saunton Sands (The Sands Cafe) on Wednesday. A complete swing on the weather front, allowed Lily & I to frolic in the sand for a brief moment. And laugh. Everything was funny. Really funny.
So - by living it up for the past week - then end result was having 'done too much'. I battled with a migraine - giving in to good old Sumatriptan by Friday night - feeling the relief by Saturday. But that's not all. On Friday afternoon - I went for my first HAIRCUT! Well - I say haircut - more a 2mm trim over my ears and a little shaping on my neck to prevent the 'old bloke needs a haircut/ fuzzy neck' look! But I am thrilled with my hair growth. Medium blonde (OK - with a little help from John Frieda Lightening Blonde shampoo), a natural wave that I've never experienced before - unless accompanied by rollers & perming lotion - and I've got a definite Kylie 'post-chemo' look. It's great! And so time saving. No extensive washing/conditioning routine. No 10 minute drying efforts. And no 15 minute GHD straightening/preening/glossing/hair spraying/checking/rechecking routines. Cool! And now, I can do sleek or punk. A whole new look! Marvellous dahhrling - simply marvellous.
And whilst this may not seem very exciting - I have made some good recovery points...for instance....
Using the Dyson for the first time last week
Doing my own ironing
Attempting to build an Ikea flat-pack unit for Lily's bedroom
Having my summer pedicure
Going to the supermarket
Agreeing to organise Lily's birthday party......
Ah yes. My Lily will be 7 on Saturday. We were in Turkey last year on holiday last year on her sixth birthday. Oblivious to the fact that I had cancer.....
We've agreed to a 14 child adventure at the local Honey Farm. Alongside real live bees, leaf eating ants & creepy-crawlies, there is a fab indoor soft play area with tons of climbing , swinging & sliding. A party tea, balloons & cake. The cake to be made by me - on orders from Lily. A 'Honey Bee' cake, with flowers, bees & honeycomb. I'm also doing face painting - although have only taught myself a bee & a spider!! But I have said 'no' to a girls sleep-over that night. 'Mummy just hasn't got quite enough energy for that at the moment Lil', I say sadly. 'S'alright Mum - we'll do it in the summer when you're really better'.
What a lovely girl.
My girl.
My reason for living & smiling.
For whom I refuse to leave this earth.
Not yet - at least. xx
I'm still here.
Please don't worry.
Suffering from writers block......
Or have I just been too busy getting on with it?
I'm being checked on every 2 weeks at the moment, and that's OK too. Four weeks ago I got a shot of super steroids (a prick up the rear!.....[the old ones are always the best]) - and although its taken about 3 weeks to work - I feel really great! The stiffness in my hands has all but disappeared, the pain in my right arm has improved, and I generally feel really good! I do get tired still, and know when I've done 'too much' as I feel 'chemo-y' and oddly, very cold. Yes - I'm the one who still puts an electric blanket on in the heatwave! My last blood tests have all come back within normal ranges & my latest X-rays show a degenerative spine - wear & tear - but no cancer in that area. Great news. My 'biggie' appointment is set for July 5th.......deep breath.
So the Jubilee is upon us!
It's all looking rather patriotic round here. The local pub is festooned in red, white & blue, as are many cottages nearby. Even I've succumbed to some bunting & flags in the house to keep young Lily happy. And there's the Jubilee Clift Bash to look forward to.The whole family, my brother and two sisters & families, and us, and Aunty Jean are all descending on my amazing Mum & Dad for some rain soaked Pimms, whole salmon and a myriad of desserts & cakes.
Tuesday 12th June
Well - come last Wednesday night - I was entirely Jubilee'd out. After an entertaining, if wet, day at Mum & Dad's on Tuesday - the freak show being provided by ones older sister's family - we then had a super lunch at Saunton Sands (The Sands Cafe) on Wednesday. A complete swing on the weather front, allowed Lily & I to frolic in the sand for a brief moment. And laugh. Everything was funny. Really funny.
So - by living it up for the past week - then end result was having 'done too much'. I battled with a migraine - giving in to good old Sumatriptan by Friday night - feeling the relief by Saturday. But that's not all. On Friday afternoon - I went for my first HAIRCUT! Well - I say haircut - more a 2mm trim over my ears and a little shaping on my neck to prevent the 'old bloke needs a haircut/ fuzzy neck' look! But I am thrilled with my hair growth. Medium blonde (OK - with a little help from John Frieda Lightening Blonde shampoo), a natural wave that I've never experienced before - unless accompanied by rollers & perming lotion - and I've got a definite Kylie 'post-chemo' look. It's great! And so time saving. No extensive washing/conditioning routine. No 10 minute drying efforts. And no 15 minute GHD straightening/preening/glossing/hair spraying/checking/rechecking routines. Cool! And now, I can do sleek or punk. A whole new look! Marvellous dahhrling - simply marvellous.
And whilst this may not seem very exciting - I have made some good recovery points...for instance....
Using the Dyson for the first time last week
Doing my own ironing
Attempting to build an Ikea flat-pack unit for Lily's bedroom
Having my summer pedicure
Going to the supermarket
Agreeing to organise Lily's birthday party......
Ah yes. My Lily will be 7 on Saturday. We were in Turkey last year on holiday last year on her sixth birthday. Oblivious to the fact that I had cancer.....
We've agreed to a 14 child adventure at the local Honey Farm. Alongside real live bees, leaf eating ants & creepy-crawlies, there is a fab indoor soft play area with tons of climbing , swinging & sliding. A party tea, balloons & cake. The cake to be made by me - on orders from Lily. A 'Honey Bee' cake, with flowers, bees & honeycomb. I'm also doing face painting - although have only taught myself a bee & a spider!! But I have said 'no' to a girls sleep-over that night. 'Mummy just hasn't got quite enough energy for that at the moment Lil', I say sadly. 'S'alright Mum - we'll do it in the summer when you're really better'.
What a lovely girl.
My girl.
My reason for living & smiling.
For whom I refuse to leave this earth.
Not yet - at least. xx
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